The Waiting List

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The demand for supports and services for Tennesseans with intellectual disabilities (ID) continues to grow. Nearly 7,000 adults and children with ID languish on the waiting list for Home and Community Based Waiver Services (HCBS) through the Tennessee Department of Intellectual and Developmental Disabilities (DIDD). Families struggle to support their loved one(s) with ID and maintain their household economically, physically and emotionally. Click HERE for the Issue Paper on the DIDD Waiting List.

The Arc TN continues its waiting list campaign, “It’s Not Too Late…End the Wait” that officially launched in 2012 with a series of family meetings in fifteen cities across the state.  Future plans include re-introduction of legislation that focuses on waiver supports for individuals on the waiting list with caregivers aged 75 and older and the sharing of family stories with legislators.

Links to important Waiting List information:

Personal Stories Matter
Sharing your story is critical to the success of bringing new money to waiver supports and services. To share your story, contact Carrie Hobbs Guiden or go to Tennessee Kindred Stories of Disability. Kindred Stories is a collaborative project of The Arc Tennessee and Vanderbilt Kennedy Center. To view the 2013 edition of Kindred Stories that focused on the waiting list, click HERE.

Changes Ahead
DIDD/TennCare recently released their “Concept Paper” that describes a proposed redesign of the current waiver system. To learn more about it and the potential impact to the waiting list, go to The Arc TN’s Public Policy Page.

Services for People with Developmental Disabilities other than ID
One of the many proposed changes in the Concept Paper is the creation of HCBS Waivers that will provide supports and services to people with developmental disabilities (DD) other than ID. Since the rewriting and passage of Title 33 in 2000, people with DD other than ID have been eligible for supports and services, but funding was not allocated for this purpose until 2016. Lawmakers and elected officials were urged to “Fulfill the Promise” for over fifteen years. To learn more about the “Fulfill the Promise” campaign,and the new Employment and Community First CHOICES waiver, click HERE.